Broad consent for research with biological samples: workshop conclusions C Grady, L Eckstein, B Berkman, D Brock, R Cook-Deegan, SM Fullerton, ... The American Journal of Bioethics 15 (9), 34-42, 2015 | 296 | 2015 |
Limitations of direct-to-consumer advertising for clinical genetic testing SE Gollust, SC Hull, BS Wilfond Jama 288 (14), 1762-1767, 2002 | 229 | 2002 |
Variability among institutional review boards’ decisions within the context of a multicenter trial H Silverman, SC Hull, J Sugarman Critical care medicine 29 (2), 235, 2001 | 229 | 2001 |
How physicians face ethical difficulties: a qualitative analysis SA Hurst, SC Hull, G DuVal, M Danis Journal of Medical Ethics 31 (1), 7-14, 2005 | 201 | 2005 |
Direct-to-consumer sales of genetic services on the Internet SE Gollust, BS Wilfond, SC Hull Genetics in Medicine 5 (4), 332-337, 2003 | 164 | 2003 |
Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research HK Tabor, BE Berkman, SC Hull, MJ Bamshad American Journal of Medical Genetics Part A 155 (12), 2916-2924, 2011 | 157 | 2011 |
The invisible hand in clinical research: the study coordinator's critical role in human subjects protection AM Davis, SC Hull, C Grady, BS Wilfond, GE Henderson Journal of Law, Medicine & Ethics 30 (3), 411-419, 2002 | 146 | 2002 |
Patients' views on identifiability of samples and informed consent for genetic research SC Hull, RR Sharp, JR Botkin, M Brown, M Hughes, J Sugarman, ... The American Journal of Bioethics 8 (10), 62-70, 2008 | 121 | 2008 |
Patients’ attitudes about the use of placebo treatments: telephone survey SC Hull, L Colloca, A Avins, NP Gordon, CP Somkin, TJ Kaptchuk, ... Bmj 347, 2013 | 120 | 2013 |
Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB) YR Rubinstein, SC Groft, R Bartek, K Brown, RA Christensen, E Collier, ... Contemporary clinical trials 31 (5), 394-404, 2010 | 117 | 2010 |
The use of medical records in research: what do patients want? NE Kass, MR Natowicz, SC Hull, RR Faden, L Plantinga, LO Gostin, ... Journal of Law, Medicine & Ethics 31 (3), 429-433, 2003 | 110 | 2003 |
Developing cellular therapies for retinal degenerative diseases K Bharti, M Rao, SC Hull, D Stroncek, BP Brooks, E Feigal, JC van Meurs, ... Investigative ophthalmology & visual science 55 (2), 1191-1202, 2014 | 94 | 2014 |
Disclosure of incidental findings from next-generation sequencing in pediatric genomic research R Abdul-Karim, BE Berkman, D Wendler, A Rid, J Khan, T Badgett, ... Pediatrics 131 (3), 564-571, 2013 | 92 | 2013 |
Physicians’ responses to resource constraints SA Hurst, SC Hull, G DuVal, M Danis Archives of Internal Medicine 165 (6), 639-644, 2005 | 88 | 2005 |
Prenatal whole genome sequencing: just because we can, should we? G Donley, SC Hull, BE Berkman Hastings Center Report 42 (4), 28-40, 2012 | 80 | 2012 |
Pediatric biobanks: approaching informed consent for continuing research after children grow up AJ Goldenberg, SC Hull, JR Botkin, BS Wilfond The Journal of pediatrics 155 (4), 578-583. e13, 2009 | 76 | 2009 |
Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants’ relatives B Chan, FM Facio, H Eidem, SC Hull, LG Biesecker, BE Berkman The American Journal of Bioethics 12 (10), 1-8, 2012 | 70 | 2012 |
The limits of disclosure: what research subjects want to know about investigator financial interests C Grady, E Horstmann, JS Sussman, SC Hull Journal of Law, Medicine & Ethics 34 (3), 592-599, 2006 | 70 | 2006 |
Disclosure, confidentiality, and families: experiences and attitudes of those with genetic versus nongenetic medical conditions L Plantinga, MR Natowicz, NE Kass, SC Hull, LO Gostin, RR Faden American Journal of Medical Genetics Part C: Seminars in Medical Genetics …, 2003 | 66 | 2003 |
Specimen collection for induced pluripotent stem cell research: harmonizing the approach to informed consent J Lowenthal, S Lipnick, M Rao, SC Hull Stem Cells Translational Medicine 1 (5), 409-421, 2012 | 65 | 2012 |