Mahsa Shabani
Mahsa Shabani
Professor at Ghent University
Geverifieerd e-mailadres voor ugent.be
Geciteerd door
Geciteerd door
Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation
M Shabani, P Borry
European Journal of Human Genetics 26 (2), 149-156, 2018
A review of the key issues associated with the commercialization of biobanks
T Caulfield, S Burningham, Y Joly, Z Master, M Shabani, P Borry, ...
Journal of Law and the Biosciences 1 (1), 94-110, 2014
Blockchain-based platforms for genomic data sharing: a de-centralized approach in response to the governance problems?
M Shabani
Journal of the American Medical Informatics Association 26 (1), 76-80, 2019
Attitudes of research participants and the general public towards genomic data sharing: a systematic literature review
M Shabani, L Bezuidenhout, P Borry
Expert review of molecular diagnostics 14 (8), 1053-1065, 2014
Re‐identifiability of genomic data and the GDPR: Assessing the re‐identifiability of genomic data in light of the EU General Data Protection Regulation
M Shabani, L Marelli
EMBO reports 20 (6), e48316, 2019
The challenges of the expanded availability of genomic information: an agenda-setting paper
P Borry, HB Bentzen, I Budin-Ljøsne, MC Cornel, HC Howard, O Feeney, ...
Journal of community genetics 9, 103-116, 2018
Ethics review of big data research: What should stay and what should be reformed?
A Ferretti, M Ienca, M Sheehan, A Blasimme, ES Dove, B Farsides, ...
BMC medical ethics 22 (1), 51, 2021
Ethics review for international data-intensive research
ES Dove, D Townend, EM Meslin, M Bobrow, K Littler, D Nicol, J de Vries, ...
Science 351 (6280), 1399-1400, 2016
From the principles of genomic data sharing to the practices of data access committees
M Shabani, BM Knoppers, P Borry
EMBO molecular medicine 7 (5), 507-509, 2015
Will the European Health Data Space change data sharing rules?
M Shabani
Science 375 (6587), 1357-1359, 2022
Is there a right time to know?: the right not to know and genetic testing in children
P Borry, M Shabani, HC Howard
Journal of Law, Medicine & Ethics 42 (1), 19-27, 2014
Controlled access under review: improving the governance of genomic data access
M Shabani, SOM Dyke, Y Joly, P Borry
PLoS Biology 13 (12), e1002339, 2015
Toward better governance of human genomic data
KC O’Doherty, M Shabani, ES Dove, HB Bentzen, P Borry, MM Burgess, ...
Nature genetics 53 (1), 2-8, 2021
Are requirements to deposit data in research repositories compatible with the European Union's general data protection regulation?
D Mascalzoni, HB Bentzen, I Budin-Ljøsne, LA Bygrave, J Bell, ES Dove, ...
Annals of Internal Medicine 170 (5), 332-334, 2019
Registered access: a ‘Triple-A’approach
SOM Dyke, E Kirby, M Shabani, A Thorogood, K Kato, BM Knoppers
European Journal of Human Genetics 24 (12), 1676-1680, 2016
DNA data marketplace: an analysis of the ethical concerns regarding the participation of the individuals
E Ahmed, M Shabani
Frontiers in genetics 10, 488227, 2019
Registered access: authorizing data access
SOM Dyke, M Linden, I Lappalainen, JR De Argila, K Carey, D Lloyd, ...
European Journal of Human Genetics 26 (12), 1721-1731, 2018
Review of policies of companies and databases regarding access to customers’ genealogy data for law enforcement purposes
S Skeva, MHD Larmuseau, M Shabani
Personalized medicine 17 (2), 141-153, 2020
Challenges of web-based personal genomic data sharing
M Shabani, P Borry
Life sciences, society and policy 11, 1-13, 2015
“You want the right amount of oversight”: interviews with data access committee members and experts on genomic data access
M Shabani, P Borry
Genetics in Medicine 18 (9), 892-897, 2016
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